We collect anonymous computer information to be able to provide the main service of this site, Spoknword Clinical Trials (“the Site”). We collect personally identifiable information from you when you register and when you answer eligibility questions regarding clinical trials. Your personally identifiable information is kept confidential and will not be disclosed unless we are required to do so by law. We do not share this information except as described in this policy (the “Privacy Policy” or “Privacy Statement”).
All other information collected from you may be used and shared with third parties on an anonymous or aggregated basis only. Your personally identifiable information is stored in our databases. You can access, modify, or permanently delete your records at any time. With your consent we may contact you from time to time about clinical trials that may suit your profile, to introduce new products, to share educational materials, to solicit patient stories after trials are completed, and for other reasons supporting our mission of helping patients find and access treatment options in development.
Spoknword Clinical Trials may contact you via phone, email, SMS text, social media, and other messaging. Spoknword Clinical Trials does not exchange personally identifiable information through/via social media – nor do we sell or share your personally identifiable information with social media channels.
PLEASE NOTE THAT YOUR RELATIONSHIP WITH FACEBOOK OR GOOGLE OR ANY OTHER THIRD-PARTY WEBSITE IS GOVERNED SOLELY BY YOUR AGREEMENT WITH SUCH THIRD-PARTY WEBSITE.
By accessing or using this Site, and our client and partner sites, you agree to this Privacy Policy. This policy may change from time to time. Your continued use of this Site after we make changes is deemed to be acceptance of those changes, so please check the policy periodically for updates.
You can opt out of this service at any time and can choose to not use the Site.
The purpose of this Privacy Statement is to explain what Spoknword Clinical Trials does with personally identifiable information that you provide to us. We want you to know how your personally identifiable information will be protected, as well as under what circumstances we may share it, with whom, and for what purposes.
Our website is not intended for children under 13 years of age. No one under age 13 may provide any personal information to or on the Site. We do not knowingly collect personal information from children under 13. If you are under 13, do not use or provide any information on this Site or on or through any of its features, and do not provide us with any information about yourself. If we learn we have collected or received personal information from a child under 13, we will delete that information.
If located in California or the European Economic Area, any child under the age of 16 years shall be restricted in the same regard.
Any information entered on behalf of a child under 13 years of age (or 16 years if located in California or the European Economic Area) must be strictly provided by a parent or legal guardian.
If you believe we might have any information from or about a child, please contact us.
The information that we ask you to provide may include your first name, last name, age, gender, racial or ethnic origin, contact details (mailing address/telephone number/mobile number/email address), information relating to your medical conditions and history.
Spoknword Clinical Trials limits the collection and processing of personal and medical information to what is necessary to fulfill the purposes for which it is to be used.
Many of our services do not require any form of registration or identification. You can freely visit many of our web pages without telling us who you are.
However, some of our services for programs, our client, and our partners do require that you provide your personal details - including but not limited to your name, contact details, health information/history, medical records and demographic information. With your consent this allows us to contact you by telephone, email, text, social media, and messaging to:
1. Provide you with information that you request about specific clinical trials or potential trials which you may be suitable for.
2. Share your information with our partners and clients to support our mission of helping patients find and access existing treatment options and those in development.
3. Further develop our products and services, to meet legal requirements or to protect the rights and safety of our customers and third parties, as well as our own.
4. Request feedback and comments to improve our service to you.
You may update your preferences or opt-out of any of these communications at any time by contacting us as directed below.
Many of our customers register for more than one trial or service, through the Site, or through a third party, such as their healthcare provider or another partner. When you register with us more than once, we may combine your personally identifiable information with computer information gathered and store it collectively. This helps us keep track of all of your preferences in one organized place, so that we can provide information to you based on a more informed review of your requests and medical conditions of interest.
Spoknword Clinical Trials takes all reasonable steps to ensure that personal data collected is reliable for its intended use, accurate, complete, and current.
When you visit the Site or access our search tool through our partners, we do not collect any personally identifiable information about you without your permission. However, we do collect information about you if your computer is set to allow that type of collection. This includes Cookies, IP address and device ID or fingerprint. You can turn off the ability to collect some of this information from your computer or device settings.
This type of information allows us to evaluate interest in our website and perform other market research analytics. It also allows us to track visitors to our website based on website advertisements about our services. Please see our Cookie Policy to learn more about our use of Cookies.
For information on how to opt out of third-party collection of information; please visit the ‘Network Advertising Initiative’ (NAI) website - an independent website not sponsored by, or affiliated with us.
We request your consent to collect your personally identifiable information when you seek to register for one of the programs or services posted through us, our partners, and clients. In doing so, we also explain, for that program or service, what you are registering to receive and how we plan to use your personal information. We also offer you the option of discontinuing your consent (“opting out” or “unsubscribing”) if you later decide that you no longer want to participate in that program or receive additional information from us. If we wish to use this information for purposes incompatible from those for which the data was initially collected, we will offer an effective way to opt out of the secondary use. Please note that if we share your personal information with a sponsor or manager of a clinical trial (a “Sponsor”) that Sponsor may continue to have access to your personal information even if you choose to no longer receive additional information from us.
Spoknword Clinical Trials will not share your personal information with third parties except as set forth in this Privacy Policy or we have otherwise obtained your explicit consent to do so. You provide your consent when you select the appropriate option and click “submit” at the end of the eligibility questions or when leaving your email address. If you are interested in a specific trial, your personal information may be shared with the Sponsor of that particular clinical trial and any partners involved in delivering the trial services. These may include clinical trial sites, clients, partner, laboratory screening, and transportation services.
Demographic and medical information you provide to us may be shared with third parties.
Spoknword Clinical Trials requests third parties to whom it discloses personal data to protect personal information using substantially similar standards to those required by us. We also request that they do not use your personal information for any separate use that is not specifically for the execution of the clinical trial or as otherwise authorized by Spoknword Clinical Trials. There may also be instances where we may be required to share your information with third parties who have not been retained by us (directly or indirectly), as ordered or directed by courts of law or other governmental agencies.
Also, clients and partners of Spoknword Clinical Trials obligated to report any Adverse Events identified through the course of the Program to the Sponsor’s Drug Safety for regulatory compliance. In these cases, you are also accepting that you and your doctor may be contacted for further information about the adverse event.
Your personal information may also be shared in the following circumstances: to our affiliates, provided their use and disclosure of your personal information will be subject to this Privacy Policy; to third-party vendors, service providers, contractors, advisors and agents who perform functions on our behalf, and who keep personal information confidential and use it only for the purposes for which Spoknword Clinical Trials discloses it to them; and to a buyer or other successor in the event of a merger, divestiture, restructuring, reorganization, dissolution or other sale or transfer of some or all of Spoknword Clinical Trials’s assets, whether as a going concern or as part of a sale, bankruptcy, liquidation or similar proceeding, in which personal information held by Spoknword Clinical Trials about our Site and customers is among the assets transferred.
Spoknword Clinical Trials uses appropriate technical, administrative, and physical safeguards to protect data that pertains to you from loss, misuse, or alteration. In addition, we take steps to ensure that our safeguards take into account new known threats. Of course, no organization can guarantee the absolute security of personal information. You should keep in mind that Internet transmissions, particularly email transmissions, are never 100% secure or error-free. Accordingly, we also caution you to guard your own computer and password against unauthorized access by others.
Any detected breach of data security (accidental or unlawful access, disclosure or misuse of personally identifiable information) shall be reported without undue delay.
Spoknword Clinical Trials retains your personally identifiable information for as long as it is necessary to provide services to you, or, until you exercise your Right to Object or withdraw your consent. (opt out) - see Your Privacy below.
Our privacy practices are periodically reviewed by our auditors to verify compliance with this Privacy Statement.
We encourage you to update the information you provide to us, such as providing us with a new mailing or email address, a name change, or a change in the medical conditions that you have notified us about. This will help us continue to provide information to you that best meets your needs. In addition, we comply with laws and regulations applicable to the right to amend your data in our files. These rights are limited in some ways. In addition, in order to protect your data from unauthorized access or alteration by third parties, all requests to update or access your information will be subject to verification of the identity of the requesting individual. If you delete your user content from the Site, copies of your user content may remain viewable in cached and archived pages, or might have been copied or stored by other Site users. Proper access and use of information provided on the Site, including user content, is governed by our Terms of Use.
This Privacy Statement becomes effective on January 1, 2021. Spoknword Clinical Trials may update this Statement from time to time. We encourage you to review our Privacy Statement periodically.
Spoknword Clinical Trials follows applicable country-specific data laws and legal frameworks in effect, to ensure that your personal information is secure and that your privacy rights are respected and protected.
This covers any collection and processing of your personal information - see Personal Information Collected From You above (including storage, retrieval, use, disclosure/sharing, restriction, blocking and erasure or destruction).
The California Consumer Privacy Act (CCPA) 2018 permits Spoknword Clinical Trials users that are California residents to access, rectify, update, restrict processing, delete/withdraw their personal information or opt-out of services.
Additionally, California Civil Code Section § 1798.83 permits California residents to request certain information regarding our disclosure of personal information to third parties for their direct marketing purposes.
To make all such requests, please send an e-mail to us.
We may require you to provide additional information necessary to confirm your identity before we comply with any request made by you.
If you have any questions about our Privacy Policy, or for any complaints, please call us at: (610) 697-9683